“It was a week before my 57th birthday that my life totally changed when I had a severe haemorrhagic stroke. It happened on a Saturday morning. The previous week had been very tiring as I had been working on the end of year accounts for the financial investment firm I had worked for for the last 14 years. It was very pressurised working to a deadline.
On the Saturday morning I felt exceptionally tired so I spent the morning reading. I really enjoyed reading particularly books about history and politics. My wife had gone shopping, my eldest son had gone to meet friends and my youngest son was on holiday abroad so I was alone in the house. Towards dinner time I began to feel unwell. I decided to walk down to the bakers to get some lunch. I had only walked a few metres down the road when I knew I was going to collapse. I grabbed onto a parked car and slid down to the floor. Luckily several passersby stopped to help me. They realised I was having a stroke and called an ambulance. I couldn’t speak although I was still conscious, I have very little memory of what happened. The people that helped me looked in my wallet to find out who I was and were able to inform my wife I had had a stroke and had been taken to Northwick Park hospital.
At Northwick Park hospital I had a scan which showed I had had a large bleed deep within the left side of my brain. My wife and eldest son rushed to be with me at the hospital but I have very little memory of this. The following day the bleed within my brain was causing the pressure within my skull to rise dangerously. If the pressure had continued to rise I would have died. I was put on a respirator and blue lighted to Charing Cross hospital for a craniotomy, an operation to release the pressure on my brain. It took several days for me to regain consciousness.
Whilst I was recovering at Charing Cross I had several tests. They found I could still swallow well but they warned me I was unlikely to be able to talk properly again a condition called aphasia. The bleed had damaged the part of my brain that finds words. I know what I want to say but can’t think of the word. If I am given the initial sound of the word I can say the word. The fact that I can’t have a conversation or tell people what I want is the most frustrating consequence of my stoke. It has also affected my reading and writing. I can only read simple sentences and I can’t write as I can’t spell. I find it very difficult to name the letters of the alphabet. My work involved a lot of maths. My maths calculation skills have remained quite good although I have difficulty understanding the names of numbers unless they are written down.
After two weeks I was transferred back to Northwick Park hospital. I was still bed bound unable to use my right arm and unable to stand or walk due to paralysis of my right hand side. They taught me to stand again.
At the beginning of May I was transferred to a rehabilitation centre at Edgware hospital. There I had daily physiotherapy and speech therapy. They taught me to walk again using a quad stick. I can only walk short distances so use my stick at home but use a wheelchair to go out. I was right handed but have had to learn to write with my left arm. I was in rehab for 12 weeks.
I returned home on the 1st August. It was very obvious that I would never be able to work again. I would not be able to drive as the vision in my right eye had been affected. My wife left her job to become my carer. My whole family has been effected by my stroke. Nothing can be done spontaneously, we have to check if places will be accessible for me.
When I returned home we felt the need to reach out to others who had experienced a stroke to gain support and advice. We attended a local Stroke Association coffee afternoon. It was good to meet others who had had a stroke. However, most of the other people had had milder strokes and had no problem chatting and some were able to drive again. It was here I met Alisha who had had a severe stroke in her 20’s and had had aphasia but had learnt to talk fluently again. She had been a primary school teacher before her stroke. She worked one to one with me to help me with my speech. She continues to help me with my speech. I really find the sessions helpful. The fact that both our strokes meant we could no longer continue with our employment or drive means we both understand how a stroke can totally change your life in an instant. We also appreciate that we were both lucky to have survived.
Another good thing has been joining Aspire gym. It is a specialist gym with adapted equipment that people in a wheelchair can also use. I joined as soon as I came out of rehab. I attend twice a week and work with a trainer. Again, working with people who have acquired a disability at the gym makes it a very supportive environment, where people are trying to improve.
I have also found it useful to take part in research projects about aphasia at University College London. The staff in the speech therapy department have such specialist knowledge about aphasia and working with them has been very helpful.”
I teach John twice a month to help him with his speech. We met at Harrow Arts Centre a few years before the pandemic. When I met him and learned he had aphasia I was keen to help him as I had been through the same thing. I have been teaching him for around two years.
He always wants to learn, and he always tries his best. I enjoy every moment we are together; he is very funny, is comfortable to ask me any questions and he always thanks me for helping him. I want to thank him as well because the determination he has to keep going and keep learning is inspiring. I know his life has completely changed and he faces challenges, but he is keen to keep learning and to enjoy life. I resonate with him as we are both fighters, and the support we have given to each other has really helped us both in each of our recovery. John’s wife has been incredible, and I look forward to continuing helping him as much as I can. I will always be in touch with John.
It is so important to remember that a stroke can happen to anyone, at any time. Unfortunately, we both were young when our strokes happened. The very important message we give to others now is to remember the FAST words: Face, Arms, Speech & Time.
There are many things that can help after a stroke, one of them being the Stroke Association who do amazing work to raise awareness of strokes and support stroke survivors. I am an ambassador of this charity and I support other survivors who want to discuss how they feel, want to share their journey or want to ask me any questions.
Thank you for taking the time to read about John’s journey and what he has gone through. If you have any questions or comments for us, please leave a comment on this page.